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Chronic Lung Disease: Coping Tips for Caregivers

When someone you love has chronic lung disease, such as pulmonary fibrosis, sarcoidosis, or COPD (chronic obstructive pulmonary disease), it can change both of your lives. (COPD includes chronic bronchitis and emphysema.) As a caregiver, you may have to support your loved one in new ways. This may be true whether you are caring for your spouse, your partner, a family member, or a friend. Learning some ways to cope can help you and your loved one.

Coping with your emotions

It’s normal to feel a range of emotions. You may feel sad, or afraid. At times, you may be angry, or frustrated. It’s important to accept these feelings. They are normal. If you find yourself feeling stressed, anxious, or depressed, seek help by reaching out to your healthcare provider, as well as family members or friends. Talk with your healthcare provider about how you are feeling. It's important for him or her to understand what is going on and how it is affecting your life. Your local VA may also offer additional support services for caregivers.

Taking care of yourself

Take time to manage your health and to refresh your mind and spirit. This gives you the energy to do your daily routine. Here are some basics that are important to your health:

  • Get enough sleep. Aim for 8 hours a day. Keep naps short so you can sleep at night. Limit alcohol and caffeine. These can affect how well you sleep.

  • Eat right. What you eat affects how you feel. Don’t skip meals. Eat balanced meals with whole grains, fruits and vegetables, and low-fat meat and dairy products.

  • Exercise. Try for at least minutes of physical activity a day. Breaking up your activity into three -minute sessions can make it easier.

Making time for you

Your needs are also important. Give yourself permission to have a life of your own. Take breaks from caregiving to relax and have fun. Here are some suggestions:

  • Share a meal with a friend.

  • Think about ways to relax. Take a walk, try yoga, deep breathing, or meditation.

  • Create a space in your home where you can be alone when needed.

  • Try to get away, even if it's just for a short time. Go to a friend's house, or take a drive or a long walk.

Accepting help

You may need help with caregiving. Knowing you can count on others can be a relief. Keep these tips in mind:

  • Make a list of things other people can help with. Ask family and friends to handle tasks such as running errands, giving rides, or preparing meals.

  • Make use of adult daycare and respite services, home meal services, and home health aide programs. These provide short-term (temporary) care for your loved one, when needed. Check with your local VA medical facility for any support services they may provide. 

Support groups

Look for resources in your area:

  • There may be a support group for people with chronic lung disease and their caregivers. This can help you feel that you’re not alone. You’ll learn coping strategies. And you'll get advice from others going through the same things you are.

  • Religion and faith-based organizations may be a source of strength and support for you also. Reach out to a leader in your faith community to discuss your spiritual needs.

  • The American Lung Association has an online support community. It also has information about local support groups. Find out more at www.lung.org.

 

 

Author: StayWell Custom Communications
Last Annual Review Date: 5/1/2020
Copyright © The StayWell Company, LLC. except where otherwise noted.
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